With the MSDA cohort explorer, we aim to allow group level queries on harmonized datasets from multiple MS registries & cohorts to facilitate and support collaborative research. We envision to develop and implement a “federated data network”. Easily put, a federated data network allows local querying of different cohorts or registries (=data does not leave the local storage unit), but the aggregated data is combined in a central platform.

A federated data network has several advantages:

We are in the process of defining the legal frame for data sharing and look forward to your input. However, some general principles are already agreed upon.