About us

Our vision

We believe data can transform the care of people with Multiple Sclerosis (MS)

We envision a world in which multiple stakeholders collaborate in the trustworthy use of real-world health data to accelerate data-driven insights necessary to transform the care of people with multiple sclerosis (MS).

Our mission

The MS Data Alliance (MSDA) is a global multi-stakeholder non-for-profit collaboration that strives to overcome the sociological and technical challenges that arise when scaling-up real-world MS data, by:

  • raising awareness about the importance of research using real-world MS data
  • enabling better discovery and access to real-world MS data
  • promoting trustworthy and transparent practices in the way real-world MS data is used.

Our values

  • MS data is used collaboratively to generate shared research and novel treatments
  • We work with patient communities and organizations to promote the value of research and the importance of MS data. 
  • To achieve this:
    • We promote to our stakeholders the importance of the data needed to conduct the research identified as patient priorities
    • We encourage all actors in our ecosystem to contribute and use data in transparent and trustworthy ways
    • We promote the collection and use of real-world data to address important knowledge needs that complement randomized clinical trials
    • We respect and promote the Findable, Accessible, Interoperable, Reusable (FAIR) principles across all MS data sources
    • We respect the autonomy and ownership of data sources
    • The MSDA will strive to support the sustainability of the MS data, knowledge, innovation and care improvement ecosystem, and of the Alliance itself