How MS organisations and advocates can help

Are you from an MS organization?
Find out how you can support the Global Data Sharing Initiative

As the COVID-19 pandemic reaches more countries, people with MS are looking to patient organizations for advice on their risks. We urgently need information on how different disease-modifying therapies for MS affect a person’s risk of developing severe COVID-19 symptoms.

We are calling on MS organizations to support the COVID-19 and MS global data sharing initiative by:

• Encouraging people with MS to report to a COVID-19 patient data initiative, regardless of whether they have experienced any symptoms. The existing COVID-19 data initiatives for people with MS can be found here.
• Encouraging the MS neurologists and clinicians in your networks to start reporting on the COVID-19 status of their patients with MS. This can be done through one of the existing COVID-19 data initiatives.
• Spread the word about the Global Data Sharing Initiative so we can encourage widespread collaborative data collection and data sharing in all areas of the world.